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Robbie Eats

As most of you know, Robbie has had a feeding tube since he was a year old. We’ve met with therapists since that time and have done everything we know how to do to encourage him to eat. At 3-years old, we have not had the success we would have hoped for.

Our family has moved back to Baltimore in order for Robbie to complete an 8-week Intensive Feeding Therapy clinic at Kennedy Krieger Hospital.

His first day is tomorrow. We are nervous, but hopeful.

Robbie and I will be gone for the majority of the day, and Rob will work from home with Andy boy.

He will have 3 feeds a day and work with a large team to hopefully teach him the skills he needs to learn to eat (chewing, swallowing, etc).

Every week I am going to post updates on his progress that will (for my sanity) likely include a small dose of complaining/sarcasm/snark (within reason).

If ever there was a time to pull all of our faith, prayer and efforts, it is now.

So check back with me each week or subscribe to the blog to keep up with his progress.

Maybe this will be the Halloween that he can indulge in his first piece of chocolate!

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9 thoughts on “Robbie Eats”

  1. I was a nanny for four awesome little kiddos (who are quadruplets), and watched them go through the feeding progam at Kennedy. I can tell you that it is not only amazing to see the results, but the team members are amazing at what they do! Some days will be downright hard to watch them do their feedings, but hold strong to your faith and what the outcome would mean! I can say now that those four kiddos now eat everything from ice cream, to corndogs, pancakes…you name it! You have to hide your food from them 🙂 They went in entirely G tube dependent, but since have had them removed. I wish you nothing but the best on your journey and will be praying for you, your son, and you’re family. I have nothing but great things to say about Kennedy!

    1. Thank you for sharing this, Ashley. That is very encouraging to hear. I’m always interested in success stories and this particular program seems to have a lot of them. I have a lot of hope!

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